We feel strongly that we have a responsibility to provide support to those affected by sickle cell disease (SCD) and beta-thalassemia. From proactively developing programs that support access to resources, to impacting health through awareness building, collaborative initiatives and fostering community resources, we are dedicated to making a difference. That’s why we created the Real Impact community support initiative to provide a measure of relief to community-based organizations (CBOs) and the patients that they serve.
The Real Impact grants program was the first initiative of the Real Impact community support program. Debuting in 2020, the Real Impact grants program, awarded 25 grants of approximately $5,000 each to community-based organizations across 13 states. These grants, which totaled $125,000, helped support the vital work of these organizations as they continue to meet the needs of patients and families affected by rare blood disorders within their communities.
2021 Real Impact grants in action:
Crescent Foundation – Philadelphia, PA
Individuals seeking relief from pain induced by sickle cell disease can be profiled, doubted and stereotyped. The team at the Crescent Foundation, a Philadelphia-based non-profit organization supporting the local SCD community and beyond, is aiming to change that paradigm.
With their 2021 Real Impact grant, Crescent will be developing its One Gene, One Life program which takes direct aim at improving conditions for patients in need of care through the education of healthcare providers.
The program will inform healthcare professionals on SCD patient experiences, illustrate opportunities to decrease implicit biases and raise awareness about the difficulty those living with SCD face when transitioning from pediatric to adult care.
For more information, check out their website: https://www.crescentfoundationscd.org/
2020 Real Impact Annual Report
We are proud of the effect that the Real Impact program has already made on the health and lives of patients and their families through resources, support, information, giving and volunteerism in its inaugural year.
To highlight Imara’s mission, we’re excited to announce the launch of our 2020 Real Impact Annual Report webpage. Each year, we plan to review the impact our Real Impact program has made on the health and lives of patients and their families through resources, support, information, giving and volunteerism and share a preview of our future priorities and commitments for the coming year. Included in this report is a full recap of our 2020 Real Impact grants program including an overview of the recipients and a preview of our 2021 Real Impact grants program.
We invite you to review our 2020 Real Impact Annual Report to learn more about the pillars of our commitment.
Real Impact Grants
Our 2021 Real Impact Grants program is now open.
The establishment of our Real Impact community grants aligns with our vision of making a meaningful difference for patients, their families and the local communities affected by sickle cell disease (SCD) and beta-thalassemia.
We believe that the most effective way to increase resources and community awareness is through the nonprofit, community-based organizations (CBOs) that work at a local level to improve the lives of those impacted by SCD and beta-thalassemia. Our Real Impact Grants program allows us to support the many important and innovative ways CBOs serve patients and families.
The Real Impact Grants will fund grants totaling up to $150,000 across three key areas:
- Social Determinants of Health (Including COVID-19 Relief) Grants: Funds will support organizations working to ease the life burden of the overall SCD and beta-thalassemia communities, including the impact of the COVID-19 pandemic, as well as those that are working to address social drivers that impact health, disease management, education and or other basic needs.
- Virtual Support Program Grants: Funds will support organizations working to provide virtual community programs that encourage access to telehealth services, mental health care programs and/or focus on other educational development areas for patients.
- Community Based Organizational Capacity Building Grant: Funds will support nonprofit organizations’ internal operations (e.g., personnel, program development and execution and other activities) to better fulfill their patient-focused missions.
We encourage all organizations who meet the grant criteria to apply by filling out the form accessible through this link.
See Our Timeline of Support for 2021:
Learn more about our 2021 Real Impact grant program here.
If you would like to know more about how Imara is working to impact the community, contact the advocacy team at email@example.com.